Tag Archives: hospital

Inhuman

I hate the Emergency room. HATE IT ! I find every way I can to avoid it. This week I wasn’t so lucky. I was and have been sick for a few months. I say a few months because I … Continue reading

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Don’t tell anyone, but I tattled

As I mentioned in my last post, Chewy (my son and CVS’r) has not been doing well. The inpatient has been scheduled. But, we have to get there. That is a struggle. Chewy has been taking his maximum amount of … Continue reading

Posted in chronic illness, CVS, Cyclic Vomiting Syndrome, DHE, health, hospital, invisible illness, Uncategorized | Tagged , , , , , , , , , | 2 Comments

Let it Go

Did you just sing the Frozen song? I did and I have had to, several time this week. Mainly to keep up my spirits. That is super hard to do when your enthusiasm is tanking. Big time. I have to … Continue reading

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Telemedicine

You may remember me mentioning the opportunity for us to have a telemedicine visit, here. We have enacted this regimen. Can I tell you that it was beautiful! Our usual rigmarole for getting and having an appointment goes like this. … Continue reading

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Slow Descent

That brings us to the daily maintaining as we slowly descend and come off our medication of choice, the DHE. Continue reading

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Hitting Close to Home

I participated in a group support phone call the other day where the recurring theme of how to be treated better in the ER came up.. Repeatedly. This isn’t new to us, when describing the ER or doctors in general. … Continue reading

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New Year, Same Issues

  As we head into the New Year, I find that my blog has been pretty silent. Every time I sit to write something I wonder if anyone really cares. Then tell myself that there is always someone that is … Continue reading

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A letter to our old School

Chronically ill students are more than their illnesses Continue reading

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Wicked, Wicked Week.

Here we go.. Ready or not.. I woke up Saturday and realized this is the week before the week. Let me explain. We PLAN to put Chewy in the Hospital. This is “typical” for us. However, sooner than we expected. … Continue reading

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Hospital stay

So we are on day three of our five day hospital stay. The IV just infiltrated and the wait and the anticipation of how many sticks it will take to get the new one starts. Good news is that there … Continue reading

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