Tag Archives: DHE

Don’t tell anyone, but I tattled

As I mentioned in my last post, Chewy (my son and CVS’r) has not been doing well. The inpatient has been scheduled. But, we have to get there. That is a struggle. Chewy has been taking his maximum amount of … Continue reading

Posted in chronic illness, CVS, Cyclic Vomiting Syndrome, DHE, health, hospital, invisible illness, Uncategorized | Tagged , , , , , , , , , | 2 Comments

Telemedicine

You may remember me mentioning the opportunity for us to have a telemedicine visit, here. We have enacted this regimen. Can I tell you that it was beautiful! Our usual rigmarole for getting and having an appointment goes like this. … Continue reading

Posted in chronic illness, CVS, Cyclic Vomiting Syndrome, DHE, invisible illness, MIgraines, Uncategorized, Vomiting | Tagged , , , , , , , , , , , | Leave a comment

Slow Descent

That brings us to the daily maintaining as we slowly descend and come off our medication of choice, the DHE. Continue reading

Posted in chronic illness, CVS, Cyclic Vomiting Syndrome, DHE, hospital, IV Infusion, MIgraines, Vomiting | Tagged , , , , , , , , , , | Leave a comment

Sweet Spot

Half the time you don’t know what is next. Continue reading

Posted in chronic illness, CVS, Cyclic Vomiting Syndrome, DHE, invisible illness, MIgraines | Tagged , , , , , , , | Leave a comment

Back to everyday

He was mad at this point. Nothing to do.. and miserable. Just needed to make one more day. Continue reading

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Wicked, Wicked Week.

Here we go.. Ready or not.. I woke up Saturday and realized this is the week before the week. Let me explain. We PLAN to put Chewy in the Hospital. This is “typical” for us. However, sooner than we expected. … Continue reading

Posted in chronic illness, CVS, Cyclic Vomiting Syndrome, DHE, hospital | Tagged , , , | 3 Comments

Recapping

No one would know looking at him that he has a very rare, very hard to diagnose, very hard to CONTROL condition… Condition.. I like that that so much better than disease. Disease is SUCH an ugly word. Continue reading

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DHE or Dihydroergotamine

Here is info that I wrote up for http://cvsaonline.org/, for their newsletter. My CVS’r has a variant case of Cyclic Vomiting Syndrome and agreed to be a case study for UCSF to keep other kids from going through what he had … Continue reading

Posted in Cyclic Vomiting Syndrome | Tagged , , , , , , | 6 Comments