Tag Archives: Cyclic Vomiting

Discover Challenge: Superpower

via Discover Challenge: Superpower What’s My Superpower? I’m a Mom. Not any ordinary mom. I’m the mom of a chronically ill person. A Mom who also likes a lot of DIY. 🙂 Does having a superpower mean I can leap … Continue reading

Posted in chronic illness, Coping, CVS, Cyclic Vomiting Syndrome, I Care About Rare, invisible illness, migraine variant, Rare Disease, Uncategorized, Vomiting | Tagged , , , , , | Leave a comment

Don’t tell anyone, but I tattled

As I mentioned in my last post, Chewy (my son and CVS’r) has not been doing well. The inpatient has been scheduled. But, we have to get there. That is a struggle. Chewy has been taking his maximum amount of … Continue reading

Posted in chronic illness, CVS, Cyclic Vomiting Syndrome, DHE, health, hospital, invisible illness, Uncategorized | Tagged , , , , , , , , , | 2 Comments

Let it Go

Did you just sing the Frozen song? I did and I have had to, several time this week. Mainly to keep up my spirits. That is super hard to do when your enthusiasm is tanking. Big time. I have to … Continue reading

Posted in chronic illness, Coping, CVS, Cyclic Vomiting Syndrome, health, hospital, invisible illness, MIgraines, Rant, Vomiting | Tagged , , , , , , , , | Leave a comment

What has been consuming my time?

As Chewy is on day two of abdominal pain (Abdominal Migraine) with Nausea.. that later today morphed into a migraine.. the stress came in like a tsunami crashing into a foreign shore. We all knew it was out there. That the … Continue reading

Posted in American Migraine Foundation, AMF, chronic illness, CVS, Cyclic Vomiting Syndrome, IV Infusion, MIgraines, Uncategorized | Tagged , , , , , , , , , , | 1 Comment

Hitting Close to Home

I participated in a group support phone call the other day where the recurring theme of how to be treated better in the ER came up.. Repeatedly. This isn’t new to us, when describing the ER or doctors in general. … Continue reading

Posted in chronic illness, Coping, CVS, Cyclic Vomiting Syndrome, education, health, health, hospital, invisible illness, IV Infusion, MIgraines, Rant, Support Groups, Uncategorized | Tagged , , , , , , , , , | Leave a comment

Blog Challenge #MHAM Day 11

Finally one on the day it is supposed to be! Yay me! Day 11- What do you do or say to others to give them hope? Whether we are talking about Chewy’s migraine variant (cyclic vomiting syndrome) or my migraines … Continue reading

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Evolving

“Good thing it wasn’t me. It could be a week, or two or 15.” And we laughed. LAUGHED. But somewhere deep down inside, we both know that it is possible. Continue reading

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Recapping

No one would know looking at him that he has a very rare, very hard to diagnose, very hard to CONTROL condition… Condition.. I like that that so much better than disease. Disease is SUCH an ugly word. Continue reading

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Still sore

Do you ever have one of those weekend where you go until you can’t possibly take another step? That was me. It was another busy weekend. Since buying the house, there are endless projects to do. Pinterest.com isn’t helping. Between … Continue reading

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International Awareness Day for Cyclic Vomiting Syndrome

So, this is our life. We live it based on how what we do will be affected by a CVS trigger. Last month we spent a week inpatient getting what we call our best preventative. And several other days getting … Continue reading

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