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Tag Archives: abdominal migraines
Don’t tell anyone, but I tattled
As I mentioned in my last post, Chewy (my son and CVS’r) has not been doing well. The inpatient has been scheduled. But, we have to get there. That is a struggle. Chewy has been taking his maximum amount of … Continue reading
Let it Go
Did you just sing the Frozen song? I did and I have had to, several time this week. Mainly to keep up my spirits. That is super hard to do when your enthusiasm is tanking. Big time. I have to … Continue reading
Telemedicine
You may remember me mentioning the opportunity for us to have a telemedicine visit, here. We have enacted this regimen. Can I tell you that it was beautiful! Our usual rigmarole for getting and having an appointment goes like this. … Continue reading
What has been consuming my time?
As Chewy is on day two of abdominal pain (Abdominal Migraine) with Nausea.. that later today morphed into a migraine.. the stress came in like a tsunami crashing into a foreign shore. We all knew it was out there. That the … Continue reading
Posted in American Migraine Foundation, AMF, chronic illness, CVS, Cyclic Vomiting Syndrome, IV Infusion, MIgraines, Uncategorized
Tagged #MHAM, #migraine, abdominal migraines, AmericanMigraineFoundation, AMF, chronic illness, chronic migraine, CVS, Cyclic Vomiting, Cyclic Vomiting syndrome, Migraines
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Slow Descent
That brings us to the daily maintaining as we slowly descend and come off our medication of choice, the DHE. Continue reading
Privacy vs getting changes made
When you have a Chronically ill child, and the school suggests that you just “stop his education until he is well enough to attend”.. The system is broken. Continue reading
Hitting Close to Home
I participated in a group support phone call the other day where the recurring theme of how to be treated better in the ER came up.. Repeatedly. This isn’t new to us, when describing the ER or doctors in general. … Continue reading
Posted in chronic illness, Coping, CVS, Cyclic Vomiting Syndrome, education, health, health, hospital, invisible illness, IV Infusion, MIgraines, Rant, Support Groups, Uncategorized
Tagged #migraine, abdominal migraines, chronic illness, chronic migraine, CVS, Cyclic Vomiting, Cyclic Vomiting syndrome, doctor, hospital, Migraines
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New Year, Same Issues
As we head into the New Year, I find that my blog has been pretty silent. Every time I sit to write something I wonder if anyone really cares. Then tell myself that there is always someone that is … Continue reading
Posted in chronic illness, Coping, CVS, Cyclic Vomiting Syndrome, health, hospital, invisible illness, MIgraines, Support Groups, Uncategorized, Vomiting
Tagged abdominal migraines, chronic illness, chronic migraine, Coping, CVS, Cyclic Vomiting syndrome, hospital, Migraines, Support Groups, Vomiting
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A letter to our old School
Chronically ill students are more than their illnesses Continue reading
Flu season panic
It is inevitable every year, since the DX of Cyclic Vomiting, and learning that it can be triggered by illness (which ours frequently does) we stress about flu season. Sasquatch (oldest) picks it up some where first.. or Hubz (who … Continue reading