Tag Archives: abdominal migraines

Don’t tell anyone, but I tattled

Posted on April 21, 2016 by adventurant

As I mentioned in my last post, Chewy (my son and CVS’r) has not been doing well. The inpatient has been scheduled. But, we have to get there. That is a struggle. Chewy has been taking his maximum amount of … Continue reading →

Posted in chronic illness, CVS, Cyclic Vomiting Syndrome, DHE, health, hospital, invisible illness, Uncategorized | Tagged , , , , , , , , , | 2 Comments

Let it Go

Posted on April 7, 2016 by adventurant

Did you just sing the Frozen song? I did and I have had to, several time this week. Mainly to keep up my spirits. That is super hard to do when your enthusiasm is tanking. Big time. I have to … Continue reading →

Posted in chronic illness, Coping, CVS, Cyclic Vomiting Syndrome, health, hospital, invisible illness, MIgraines, Rant, Vomiting | Tagged , , , , , , , , | Leave a comment

Telemedicine

Posted on April 5, 2016 by adventurant

You may remember me mentioning the opportunity for us to have a telemedicine visit, here. We have enacted this regimen. Can I tell you that it was beautiful! Our usual rigmarole for getting and having an appointment goes like this. … Continue reading →

Posted in chronic illness, CVS, Cyclic Vomiting Syndrome, DHE, invisible illness, MIgraines, Uncategorized, Vomiting | Tagged , , , , , , , , , , , | Leave a comment

What has been consuming my time?

Posted on March 18, 2016 by adventurant

As Chewy is on day two of abdominal pain (Abdominal Migraine) with Nausea.. that later today morphed into a migraine.. the stress came in like a tsunami crashing into a foreign shore. We all knew it was out there. That the … Continue reading →

Posted in American Migraine Foundation, AMF, chronic illness, CVS, Cyclic Vomiting Syndrome, IV Infusion, MIgraines, Uncategorized | Tagged , , , , , , , , , , | 1 Comment

Slow Descent

Posted on February 26, 2016 by adventurant

That brings us to the daily maintaining as we slowly descend and come off our medication of choice, the DHE. Continue reading →

Posted in chronic illness, CVS, Cyclic Vomiting Syndrome, DHE, hospital, IV Infusion, MIgraines, Vomiting | Tagged , , , , , , , , , , | Leave a comment

Privacy vs getting changes made

Posted on February 18, 2016 by adventurant

When you have a Chronically ill child, and the school suggests that you just “stop his education until he is well enough to attend”.. The system is broken. Continue reading →

Posted in chronic illness, CVS, Cyclic Vomiting Syndrome, education, education, health, Uncategorized, Vomiting | Tagged , , , , , , , , , | Leave a comment

Hitting Close to Home

Posted on January 19, 2016 by adventurant

I participated in a group support phone call the other day where the recurring theme of how to be treated better in the ER came up.. Repeatedly. This isn’t new to us, when describing the ER or doctors in general. … Continue reading →

Posted in chronic illness, Coping, CVS, Cyclic Vomiting Syndrome, education, health, health, hospital, invisible illness, IV Infusion, MIgraines, Rant, Support Groups, Uncategorized | Tagged , , , , , , , , , | Leave a comment

New Year, Same Issues

Posted on January 15, 2016 by adventurant

  As we head into the New Year, I find that my blog has been pretty silent. Every time I sit to write something I wonder if anyone really cares. Then tell myself that there is always someone that is … Continue reading →

Posted in chronic illness, Coping, CVS, Cyclic Vomiting Syndrome, health, hospital, invisible illness, MIgraines, Support Groups, Uncategorized, Vomiting | Tagged , , , , , , , , , | Leave a comment

A letter to our old School

Posted on November 25, 2015 by adventurant

Chronically ill students are more than their illnesses Continue reading →

Posted in chronic illness, Cyclic Vomiting Syndrome, education, education, health, hospital, invisible illness, IV Infusion, MIgraines, Uncategorized, Vomiting | Tagged , , , , , , , | Leave a comment

Flu season panic

Posted on October 22, 2015 by adventurant

It is inevitable every year, since the DX of Cyclic Vomiting, and learning that it can be triggered by illness (which ours frequently does) we stress about flu season. Sasquatch (oldest) picks it up some where first.. or Hubz (who … Continue reading →

Posted in chronic illness, CVS, Cyclic Vomiting Syndrome, education, invisible illness, MIgraines | Tagged , , , , , | 2 Comments