Category Archives: Vomiting

One more misleading article

I have sent off angry emails yet again to another Author and Editor of an article that was published where Cyclic Vomiting Syndrome was confused with Cannabinoid Hyperemesis Syndrome. I know that part of being a doctor is to try … Continue reading

Posted in chronic illness, Coping, CVS, Cyclic Vomiting Syndrome, education, health, healthcare, hospital, IV Infusion, Rant, Uncategorized, Vomiting | Tagged , , , , , | Leave a comment

Discover Challenge: Superpower

via Discover Challenge: Superpower What’s My Superpower? I’m a Mom. Not any ordinary mom. I’m the mom of a chronically ill person. A Mom who also likes a lot of DIY. 🙂 Does having a superpower mean I can leap … Continue reading

Posted in chronic illness, Coping, CVS, Cyclic Vomiting Syndrome, I Care About Rare, invisible illness, migraine variant, Rare Disease, Uncategorized, Vomiting | Tagged , , , , , | Leave a comment

Daily Prompt: Sincere

We’ve witnessed the sincere pain and agony and despair that creep in, in the times that become to much to fight.
Continue reading

Posted in chronic illness, CVS, Cyclic Vomiting Syndrome, I Care About Rare, invisible illness, migraine variant, Rare Disease, Uncategorized, Vomiting | Tagged , , , , , , | Leave a comment

Daily Prompt: Volunteer

via Daily Prompt: Volunteer This word hits me hard especially this month as I continue down my road of helping others. Volunteer. You see the picture that goes around Facebook of Jimmy Carter in his 90’s battling Cancer and still … Continue reading

Posted in Cyclic Vomiting Syndrome, I Care About Rare, invisible illness, migraine variant, Rare Disease, Uncategorized, Vomiting | Tagged , , , , , , | Leave a comment

Emotional October

I haven’t posted in a while, I’m sorry. A lot of it has to do with I don’t know what to say. Then I sit down and the words just trip over themselves to get out and the posts make … Continue reading

Posted in chronic illness, CVS, Cyclic Vomiting Syndrome, hospital, Vomiting | Tagged , , , , , , | 4 Comments

Let it Go

Did you just sing the Frozen song? I did and I have had to, several time this week. Mainly to keep up my spirits. That is super hard to do when your enthusiasm is tanking. Big time. I have to … Continue reading

Posted in chronic illness, Coping, CVS, Cyclic Vomiting Syndrome, health, hospital, invisible illness, MIgraines, Rant, Vomiting | Tagged , , , , , , , , | Leave a comment

Telemedicine

You may remember me mentioning the opportunity for us to have a telemedicine visit, here. We have enacted this regimen. Can I tell you that it was beautiful! Our usual rigmarole for getting and having an appointment goes like this. … Continue reading

Posted in chronic illness, CVS, Cyclic Vomiting Syndrome, DHE, invisible illness, MIgraines, Uncategorized, Vomiting | Tagged , , , , , , , , , , , | Leave a comment

Slow Descent

That brings us to the daily maintaining as we slowly descend and come off our medication of choice, the DHE. Continue reading

Posted in chronic illness, CVS, Cyclic Vomiting Syndrome, DHE, hospital, IV Infusion, MIgraines, Vomiting | Tagged , , , , , , , , , , | Leave a comment

Privacy vs getting changes made

When you have a Chronically ill child, and the school suggests that you just “stop his education until he is well enough to attend”.. The system is broken. Continue reading

Posted in chronic illness, CVS, Cyclic Vomiting Syndrome, education, education, health, Uncategorized, Vomiting | Tagged , , , , , , , , , | Leave a comment

New Year, Same Issues

  As we head into the New Year, I find that my blog has been pretty silent. Every time I sit to write something I wonder if anyone really cares. Then tell myself that there is always someone that is … Continue reading

Posted in chronic illness, Coping, CVS, Cyclic Vomiting Syndrome, health, hospital, invisible illness, MIgraines, Support Groups, Uncategorized, Vomiting | Tagged , , , , , , , , , | Leave a comment