Category Archives: MIgraines

Emotional October continued

I always felt like we were treading water without being able to see land in any direction Continue reading

Posted in #MHAM, American Migraine Foundation, chronic illness, Coping, CVS, Cyclic Vomiting Syndrome, I Care About Rare, invisible illness, migraine variant, MIgraines, Rare Disease, Uncategorized | Leave a comment

Let it Go

Did you just sing the Frozen song? I did and I have had to, several time this week. Mainly to keep up my spirits. That is super hard to do when your enthusiasm is tanking. Big time. I have to … Continue reading

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Telemedicine

You may remember me mentioning the opportunity for us to have a telemedicine visit, here. We have enacted this regimen. Can I tell you that it was beautiful! Our usual rigmarole for getting and having an appointment goes like this. … Continue reading

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What has been consuming my time?

As Chewy is on┬áday two of abdominal pain (Abdominal Migraine) with Nausea.. that later today morphed into a migraine.. the stress came in like a tsunami crashing into a foreign shore. We all knew it was out there. That the … Continue reading

Posted in American Migraine Foundation, AMF, chronic illness, CVS, Cyclic Vomiting Syndrome, IV Infusion, MIgraines, Uncategorized | Tagged , , , , , , , , , , | 1 Comment

Slow Descent

That brings us to the daily maintaining as we slowly descend and come off our medication of choice, the DHE. Continue reading

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Fog Brain

I have been walking around in a fog for days.. quite possibly months. I almost mailed the wrong packages to the wrong people.My thoughts just aren’t connecting with each other. More than normal. When I was out walking in the … Continue reading

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Hitting Close to Home

I participated in a group support phone call the other day where the recurring theme of how to be treated better in the ER came up.. Repeatedly. This isn’t new to us, when describing the ER or doctors in general. … Continue reading

Posted in chronic illness, Coping, CVS, Cyclic Vomiting Syndrome, education, health, health, hospital, invisible illness, IV Infusion, MIgraines, Rant, Support Groups, Uncategorized | Tagged , , , , , , , , , | Leave a comment

New Year, Same Issues

  As we head into the New Year, I find that my blog has been pretty silent. Every time I sit to write something I wonder if anyone really cares. Then tell myself that there is always someone that is … Continue reading

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A letter to our old School

Chronically ill students are more than their illnesses Continue reading

Posted in chronic illness, Cyclic Vomiting Syndrome, education, education, health, hospital, invisible illness, IV Infusion, MIgraines, Uncategorized, Vomiting | Tagged , , , , , , , | Leave a comment

Flu season panic

It is inevitable every year, since the DX of Cyclic Vomiting, and learning that it can be triggered by illness (which ours frequently does) we stress about flu season. Sasquatch (oldest) picks it up some where first.. or Hubz (who … Continue reading

Posted in chronic illness, CVS, Cyclic Vomiting Syndrome, education, invisible illness, MIgraines | Tagged , , , , , | 2 Comments