Category Archives: invisible illness

Discover Challenge: Superpower

via Discover Challenge: Superpower What’s My Superpower? I’m a Mom. Not any ordinary mom. I’m the mom of a chronically ill person. A Mom who also likes a lot of DIY. 🙂 Does having a superpower mean I can leap … Continue reading

Posted in chronic illness, Coping, CVS, Cyclic Vomiting Syndrome, I Care About Rare, invisible illness, migraine variant, Rare Disease, Uncategorized, Vomiting | Tagged , , , , , | Leave a comment

Daily Prompt: Sincere

We’ve witnessed the sincere pain and agony and despair that creep in, in the times that become to much to fight.
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Daily Prompt: Volunteer

via Daily Prompt: Volunteer This word hits me hard especially this month as I continue down my road of helping others. Volunteer. You see the picture that goes around Facebook of Jimmy Carter in his 90’s battling Cancer and still … Continue reading

Posted in Cyclic Vomiting Syndrome, I Care About Rare, invisible illness, migraine variant, Rare Disease, Uncategorized, Vomiting | Tagged , , , , , , | Leave a comment

Emotional October continued

I always felt like we were treading water without being able to see land in any direction Continue reading

Posted in #MHAM, American Migraine Foundation, chronic illness, Coping, CVS, Cyclic Vomiting Syndrome, I Care About Rare, invisible illness, migraine variant, MIgraines, Rare Disease, Uncategorized | Leave a comment

Don’t tell anyone, but I tattled

As I mentioned in my last post, Chewy (my son and CVS’r) has not been doing well. The inpatient has been scheduled. But, we have to get there. That is a struggle. Chewy has been taking his maximum amount of … Continue reading

Posted in chronic illness, CVS, Cyclic Vomiting Syndrome, DHE, health, hospital, invisible illness, Uncategorized | Tagged , , , , , , , , , | 2 Comments

Let it Go

Did you just sing the Frozen song? I did and I have had to, several time this week. Mainly to keep up my spirits. That is super hard to do when your enthusiasm is tanking. Big time. I have to … Continue reading

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Telemedicine

You may remember me mentioning the opportunity for us to have a telemedicine visit, here. We have enacted this regimen. Can I tell you that it was beautiful! Our usual rigmarole for getting and having an appointment goes like this. … Continue reading

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Hitting Close to Home

I participated in a group support phone call the other day where the recurring theme of how to be treated better in the ER came up.. Repeatedly. This isn’t new to us, when describing the ER or doctors in general. … Continue reading

Posted in chronic illness, Coping, CVS, Cyclic Vomiting Syndrome, education, health, health, hospital, invisible illness, IV Infusion, MIgraines, Rant, Support Groups, Uncategorized | Tagged , , , , , , , , , | Leave a comment

New Year, Same Issues

  As we head into the New Year, I find that my blog has been pretty silent. Every time I sit to write something I wonder if anyone really cares. Then tell myself that there is always someone that is … Continue reading

Posted in chronic illness, Coping, CVS, Cyclic Vomiting Syndrome, health, hospital, invisible illness, MIgraines, Support Groups, Uncategorized, Vomiting | Tagged , , , , , , , , , | Leave a comment

A letter to our old School

Chronically ill students are more than their illnesses Continue reading

Posted in chronic illness, Cyclic Vomiting Syndrome, education, education, health, hospital, invisible illness, IV Infusion, MIgraines, Uncategorized, Vomiting | Tagged , , , , , , , | Leave a comment