Category Archives: hospital

One more misleading article

I have sent off angry emails yet again to another Author and Editor of an article that was published where Cyclic Vomiting Syndrome was confused with Cannabinoid Hyperemesis Syndrome. I know that part of being a doctor is to try … Continue reading

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Emotional October

I haven’t posted in a while, I’m sorry. A lot of it has to do with I don’t know what to say. Then I sit down and the words just trip over themselves to get out and the posts make … Continue reading

Posted in chronic illness, CVS, Cyclic Vomiting Syndrome, hospital, Vomiting | Tagged , , , , , , | 4 Comments

Inhuman

I hate the Emergency room. HATE IT ! I find every way I can to avoid it. This week I wasn’t so lucky. I was and have been sick for a few months. I say a few months because I … Continue reading

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Don’t tell anyone, but I tattled

As I mentioned in my last post, Chewy (my son and CVS’r) has not been doing well. The inpatient has been scheduled. But, we have to get there. That is a struggle. Chewy has been taking his maximum amount of … Continue reading

Posted in chronic illness, CVS, Cyclic Vomiting Syndrome, DHE, health, hospital, invisible illness, Uncategorized | Tagged , , , , , , , , , | 2 Comments

Let it Go

Did you just sing the Frozen song? I did and I have had to, several time this week. Mainly to keep up my spirits. That is super hard to do when your enthusiasm is tanking. Big time. I have to … Continue reading

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Slow Descent

That brings us to the daily maintaining as we slowly descend and come off our medication of choice, the DHE. Continue reading

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Hitting Close to Home

I participated in a group support phone call the other day where the recurring theme of how to be treated better in the ER came up.. Repeatedly. This isn’t new to us, when describing the ER or doctors in general. … Continue reading

Posted in chronic illness, Coping, CVS, Cyclic Vomiting Syndrome, education, health, health, hospital, invisible illness, IV Infusion, MIgraines, Rant, Support Groups, Uncategorized | Tagged , , , , , , , , , | Leave a comment

New Year, Same Issues

  As we head into the New Year, I find that my blog has been pretty silent. Every time I sit to write something I wonder if anyone really cares. Then tell myself that there is always someone that is … Continue reading

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A letter to our old School

Chronically ill students are more than their illnesses Continue reading

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Random Ponderings

That is where it gets scary, as a parent. The place that you take your kid that should know how to help your kid.. Doesn’t. Continue reading

Posted in chronic illness, CVS, Cyclic Vomiting Syndrome, health, hospital, invisible illness, IV Infusion, MIgraines, Vomiting | Tagged , , , , , | 1 Comment