Category Archives: CVS

One more misleading article

I have sent off angry emails yet again to another Author and Editor of an article that was published where Cyclic Vomiting Syndrome was confused with Cannabinoid Hyperemesis Syndrome. I know that part of being a doctor is to try … Continue reading

Posted in chronic illness, Coping, CVS, Cyclic Vomiting Syndrome, education, health, healthcare, hospital, IV Infusion, Rant, Uncategorized, Vomiting | Tagged , , , , , | Leave a comment

Discover Challenge: Superpower

via Discover Challenge: Superpower What’s My Superpower? I’m a Mom. Not any ordinary mom. I’m the mom of a chronically ill person. A Mom who also likes a lot of DIY. 🙂 Does having a superpower mean I can leap … Continue reading

Posted in chronic illness, Coping, CVS, Cyclic Vomiting Syndrome, I Care About Rare, invisible illness, migraine variant, Rare Disease, Uncategorized, Vomiting | Tagged , , , , , | Leave a comment

Daily Prompt: Sincere

We’ve witnessed the sincere pain and agony and despair that creep in, in the times that become to much to fight.
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Emotional October continued

I always felt like we were treading water without being able to see land in any direction Continue reading

Posted in #MHAM, American Migraine Foundation, chronic illness, Coping, CVS, Cyclic Vomiting Syndrome, I Care About Rare, invisible illness, migraine variant, MIgraines, Rare Disease, Uncategorized | Leave a comment

Emotional October

I haven’t posted in a while, I’m sorry. A lot of it has to do with I don’t know what to say. Then I sit down and the words just trip over themselves to get out and the posts make … Continue reading

Posted in chronic illness, CVS, Cyclic Vomiting Syndrome, hospital, Vomiting | Tagged , , , , , , | 4 Comments

Don’t tell anyone, but I tattled

As I mentioned in my last post, Chewy (my son and CVS’r) has not been doing well. The inpatient has been scheduled. But, we have to get there. That is a struggle. Chewy has been taking his maximum amount of … Continue reading

Posted in chronic illness, CVS, Cyclic Vomiting Syndrome, DHE, health, hospital, invisible illness, Uncategorized | Tagged , , , , , , , , , | 2 Comments

Let it Go

Did you just sing the Frozen song? I did and I have had to, several time this week. Mainly to keep up my spirits. That is super hard to do when your enthusiasm is tanking. Big time. I have to … Continue reading

Posted in chronic illness, Coping, CVS, Cyclic Vomiting Syndrome, health, hospital, invisible illness, MIgraines, Rant, Vomiting | Tagged , , , , , , , , | Leave a comment

Telemedicine

You may remember me mentioning the opportunity for us to have a telemedicine visit, here. We have enacted this regimen. Can I tell you that it was beautiful! Our usual rigmarole for getting and having an appointment goes like this. … Continue reading

Posted in chronic illness, CVS, Cyclic Vomiting Syndrome, DHE, invisible illness, MIgraines, Uncategorized, Vomiting | Tagged , , , , , , , , , , , | Leave a comment

What has been consuming my time?

As Chewy is on day two of abdominal pain (Abdominal Migraine) with Nausea.. that later today morphed into a migraine.. the stress came in like a tsunami crashing into a foreign shore. We all knew it was out there. That the … Continue reading

Posted in American Migraine Foundation, AMF, chronic illness, CVS, Cyclic Vomiting Syndrome, IV Infusion, MIgraines, Uncategorized | Tagged , , , , , , , , , , | 1 Comment

Slow Descent

That brings us to the daily maintaining as we slowly descend and come off our medication of choice, the DHE. Continue reading

Posted in chronic illness, CVS, Cyclic Vomiting Syndrome, DHE, hospital, IV Infusion, MIgraines, Vomiting | Tagged , , , , , , , , , , | Leave a comment