Daily Prompt: Sincere

via Daily Prompt: Sincere

Today’s daily Prompt seems fitting after I read this article about a photographer Dad that posted a picture, that has gone Viral, of his daughter in pain from her cancer battle.

I am sincerely appreciative that he is sharing the worst. It is heartbreaking to watch your kids go through awful things like that. Very few people WILL or CAN understand those moments. Others understand all too well.

We have had more than our Share of those moments. I will not compare them to any child or adult that has been or does suffer from Cancer or a lot of other debilitating diseases or conditions. We all fight unseen battles.

My son, We refer to him as Chewy here on the blog, suffers from Cyclic Vomiting Syndrome, a rare condition. This puts him in the Chronically ill category. Our journey of getting a diagnosis was a very long one. Long enough that it almost cost Chewy his life.

So we know about the harsh struggles.

We know about the daily fight  to stay alive.20131015-135731.jpg

We know the heartbreak of watching the friendships go away.

We know about the people that mistrust and can’t believe the struggle you’re fighting is real.

We know that the medical community doesn’t understand the condition because you’re Rare.

We know that there isn’t enough known about the condition to treat him.

But, we know him. We know that the pain is real. The illness is real.

We’ve witnessed the sincere pain and agony and despair that creep in, in the times that become to much to fight.

That is why I FIGHT. I ADVOCATE and I EDUCATE others about Cyclic Vomiting Syndrome.

IMG_3095

To learn more about Cyclic Vomiting Syndrome or CVS please visit CVSAonline.org 

This entry was posted in chronic illness, CVS, Cyclic Vomiting Syndrome, I Care About Rare, invisible illness, migraine variant, Rare Disease, Uncategorized, Vomiting and tagged , , , , , , . Bookmark the permalink.

Leave a Reply

Fill in your details below or click an icon to log in:

WordPress.com Logo

You are commenting using your WordPress.com account. Log Out /  Change )

Google photo

You are commenting using your Google account. Log Out /  Change )

Twitter picture

You are commenting using your Twitter account. Log Out /  Change )

Facebook photo

You are commenting using your Facebook account. Log Out /  Change )

Connecting to %s