This word hits me hard especially this month as I continue down my road of helping others.
You see the picture that goes around Facebook of Jimmy Carter in his 90’s battling Cancer and still building houses for the less fortunate. Where do you think he learned to give back? Why?
For me it has been because our struggle with Cyclic Vomiting Syndrome and ALL that goes with it. The medical struggles with the medical professionals, the insurance coverage, the medications, the hospitalizations, the schooling.. the non-stop battles that you fight as a parent of a chronically-ill person.
If it hadn’t been for some of the conversations that I had with other parents in situations like ours, I would not have made it through some of the harder times with my mind intact.
They had been through similar or had suggestions or knew how to use machines or devices or had asked questions that I did not want to. They were fonts of information or just someone who understood what we go through. That understanding is the best part. Medical professionals can only do and say so much. They don’t know or live through what you do. The advice and suggestions of people who understand and live like you do is invaluable.
So, now that Chewy has been stable enough to allow me time to spread my knowledgeable wings.. I am sending my experience back out into the world. I have joined and try to keep up on Facebook support groups. I moderate a once a month call for a support call. I have gone through the volunteer process to start helping out with family interaction and advisory at a local hospital.
I’m volunteering to help and talk with people that maybe starting on their chronic journeys.
It’s a new adventure for me. What’s yours?