International Awareness Day for Cyclic Vomiting Syndrome

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So, this is our life. We live it based on how what we do will be affected by a CVS trigger. Last month we spent a week inpatient getting what we call our best preventative. And several other days getting everything in order for the inpatient. The prescriptions, the pre-appointments, the tests, anything that we had to do to get him taken care of. Then while inpatient we had a phone conference for his 504.  While we are light years away from where we were a couple years ago, we still struggle.

So we will be taking today to reflect on the strides we have made in getting the educated help for our CVS’r that we have.

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